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Old January 15th, 2009, 08:28 AM   #41
Leanz
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How often are they checking her blood sugar every 8hr, every 6, every 4, every hour? Just wondering how long is going between the 120 readings and the 500+ readings?
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Old January 15th, 2009, 08:28 AM   #42
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Beautiful little girl, the doctor is right about crazy red heads!!! hang in there and all will be well!
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Old January 15th, 2009, 09:01 AM   #43
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I'm glad you caught it early.

Red heads are the best.. :)

What's the American Girls name??

Get well quick Hannah!
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Old January 15th, 2009, 09:12 AM   #44
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hows she doin?
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Old January 15th, 2009, 09:20 AM   #45
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Hang tough Hannah!
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Old January 15th, 2009, 09:26 AM   #46
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thats scary stuff. glad you caught it in time. good job mom!
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Old January 15th, 2009, 09:42 AM   #47
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Wow - I always think of older people getting this - I heard it's one of the fastest growing issues here in the states - I think it has to do with our food - Don't know a lot about it though.
Wish you the best on figuring out how to live with this - I will say a prayer for your family today - God Bless
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Old January 15th, 2009, 10:32 AM   #48
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Wow, sounds just like my son's onset, losing weight thinking it was a growth spurt, lots of water but always thirsty, and lots -n- lots of peeing. He was diagnosed in July of '05 in Canada on vacation.

Hang with it, everything will even out, it's a process. They have to figure out which kinds of insulin they need to use and how much. It will take a while to get all of that figured out.

My son is on a pump now and plays hockey, has played soccer, and runs track. He's 13 now and finally starting to understand that its there forever.

If you need to talk, my wife and I would be glad to help out.
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Old January 15th, 2009, 10:33 AM   #49
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The American Girls name is Karla. :)

We just checked her levels and she was at 380 after a walk downstairs and back. They're increasing her Lantis this evening and keeping her at least one more day. With the way she's peaking at night, we need to figure this out. She's feeling better though, I asked her how she felt after our walk and she said good, but not ready to run a marathon yet.
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Old January 15th, 2009, 10:58 AM   #50
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You guys are all so awesome. It is so helpful to read these and know that we're not alone.

We just got news that we're heading to DeVoss tomorrow morning, not to stay but for our visit with the Pediatric Endocrinologist. Hannah is VERY happy.
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Old January 15th, 2009, 11:09 AM   #51
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Quote:
Originally Posted by Mommabear View Post
The American Girls name is Karla. :)

We just checked her levels and she was at 380 after a walk downstairs and back. They're increasing her Lantis this evening and keeping her at least one more day. With the way she's peaking at night, we need to figure this out. She's feeling better though, I asked her how she felt after our walk and she said good, but not ready to run a marathon yet.
I can tell you that when it gets high like that you would not believe how shitty you feel. when it gets under control she will feel like a brand new person. I remember it being like a weight was lifted off me because of how good I felt after. it will just take some time. if they send her to classes through the hospital, or you can ask the hospital they should have educational samples of different levels of blood sugar blood in bags so you can compare normal blood to the level it was at when admitted. close to 600 and it's going to be jello-ish. when you see and feel that and know that is what the heart had to pump through the veins and capillaries it is disgusting. when I did that I puked all over the floor.

I don't know how they do it now adays. but I had to go to educational classes for it at the hospital for 2 weeks after I was released. but they taught me a ton of stuff. I ended up on 70/30 and they explained the insulin to me and even how to mix from two separate bottles in case of emergency.
they taught about foot care, injection site rotation, etc.
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Old January 15th, 2009, 12:07 PM   #52
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when I did that I puked all over the floor.

I don't know how they do it now adays. but I had to go to educational classes for it at the hospital for 2 weeks after I was released. but they taught me a ton of stuff. I ended up on 70/30 and they explained the insulin to me and even how to mix from two separate bottles in case of emergency.
they taught about foot care, injection site rotation, etc.
I will probably puke, Hannah will go OOOoooohhh..

She's been the talk of the floor regarding her tolerance for blood draws, doing her own injections and overall attitude. I could learn a lot from her.

We've had a TON of education and that's what tomorrow in DeVoss is all about. 4 1/2 hour appointment @ 12:45pm so we have to get out of her fairly quickly. Currently my biggest concern is how to handle lunch/insulin/sugar checks on the trip down.
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Old January 15th, 2009, 12:21 PM   #53
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I will probably puke, Hannah will go OOOoooohhh..

She's been the talk of the floor regarding her tolerance for blood draws, doing her own injections and overall attitude. I could learn a lot from her.

We've had a TON of education and that's what tomorrow in DeVoss is all about. 4 1/2 hour appointment @ 12:45pm so we have to get out of her fairly quickly. Currently my biggest concern is how to handle lunch/insulin/sugar checks on the trip down.
ahh the first hypoglycemic adventure Fun times. before you know it she'll operate at 60 without issue.
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Old January 15th, 2009, 12:29 PM   #54
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thats scary stuff. glad you caught it in time. good job mom!
x2

What a darling girl you have, and what a blessing to have caught it in time.
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Old January 15th, 2009, 04:46 PM   #55
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How often are they checking her blood sugar every 8hr, every 6, every 4, every hour? Just wondering how long is going between the 120 readings and the 500+ readings?
Ack..missed this, sorry!

Initially they were checking it every hour, they are now trying to fit a pattern of meal times/bedtimes. She is encouraged to check any other time she doesn't feel "right". The hospital checks at night are about every 2 hours.

Her problem seems to be at night. They are increasing her long term insulin tonight and they increased her short term to 20 units before a 2 carb breakfast.

Can't wait to meet with the endocrinologist tomorrow!
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Old January 15th, 2009, 06:57 PM   #56
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You'll learn alot. Is the doctor a pediatric specialist? I would think so but you never know. We started with a general endocrynologist and they suggested getting to a peeds specialist.
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Old January 15th, 2009, 09:30 PM   #57
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You'll learn alot. Is the doctor a pediatric specialist? I would think so but you never know. We started with a general endocrynologist and they suggested getting to a peeds specialist.
Yes, he is a pediatric specialist. They come up here at certain times during the month and for the initial visit, we go there.
I"m looking forward to it tomorrow, not just that we get out of here but it's closer to being on our own. I am nervous about being on our own for lunch...silly as that sounds.
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Old January 16th, 2009, 07:41 AM   #58
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Yes, he is a pediatric specialist. They come up here at certain times during the month and for the initial visit, we go there.
I"m looking forward to it tomorrow, not just that we get out of here but it's closer to being on our own. I am nervous about being on our own for lunch...silly as that sounds.
eating will be a lot less scary once they set a diet plan and educate you on exchanges and carb counting. I have done both and the exchange method is offers much better control. if I use my exchange diet plan and use them when I eat my HbA1c scores are never higher than 5.6, but a few years ago they switched me to carb counting method and the HbA1c scores went to 6.5-7.0 range. I said screw you and went back to the exchange method.

once they explain how the body uses complex and simple sugars and how it relates to being on insulin the mystery will be removed.
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Old January 16th, 2009, 05:38 PM   #59
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First off, thanks to everyone in this thread for their support... Mommabear and I really appreciate it (not to mention Hannah, herself). It's certainly going to be an interesting journey (for lack of a better phrase).

Anyway... as-of today (this morning), there are some new developments. I figured I'd post linkage here so-as to catch those that might have been following this thread and may not see the other one...
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Old January 18th, 2009, 09:12 PM   #60
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Update, for those that care...We're going to attempt going to Devos again tomorrow though I have to admit to being a bit nervous about getting back on the highway. Better to get back on the horse that threw ya, eh?

Her levels have really started to come around and we're testing before every meal/bedtime/snack with minimum of 4 insulin shots per day. She'll be back to school on Wednesday and we meet with the school tomorrow so they know how to deal with the situation.

Oh..and she's gained ten lbs!!! She looks so fabulous, makes me very very happy.
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